15-year-old melanoma survivor Toby Rayner will lead Mount Gambier's march against melanoma

15-year-old melanoma survivor Toby Rayner will lead Mount Gambier's march against melanoma

28 February 2018

15-year-old melanoma survivor Toby Rayner will lead Mount Gambier’s march against melanoma. Julie-Ann Sams knows all too well that melanoma doesn’t discriminate. Life changed for her youngest son, Toby Rayner, when he was diagnosed with a rare from of iris melanoma that sadly required his left eye to be surgically removed.

Toby’s story began at his local optometrist when, in late 2014, his optometrist noticed a small
freckle in his left eye. The optometrist told Julie-Ann to keep an eye on it in case it started to cause problems. It wasn’t until August 2015 that Toby started to complain about pain in his eye and difficulty reading the board at school. It was at that point that Julie-Ann worried it might be something more than just a freckle.

Toby’s optometrist examined his eye and referred him to an ophthalmologist who then referred him to an oncologist in Melbourne for further tests. The oncologist performed a biopsy on the freckle, and unfortunately the results revealed Toby had a rare form of iris melanoma, which would require his eye to be removed.

On November 30, just three days before his thirteenth birthday, Toby had his left eye removed.
It was a life-changing event, yet Toby hasn’t let his melanoma diagnosis get him down, showing incredible bravery throughout his melanoma journey and only taking two weeks off school following his surgery.

Julie-Ann has been blown away by the support of her friends and the community, with Toby’s best friend Josh Telford shaving his head and his family hosting fundraisers to help support the family through Toby’s journey.

“My family and I only moved to Mount Gambier six years ago and we are forever grateful for the
support we’ve received from the community. We can’t thank them enough for getting us through
this difficult time,” says Julie-Ann.

Julie-Ann says she hopes this year’s Melanoma March raises awareness about melanoma and the importance of getting regular checks. This year 14,000 Australians will be told they have melanoma, one of the highest rates in the world.

Toby will be cutting the ribbon and leading out the Mount Gambier Melanoma March on 4 March to raise funds for life-saving research and to try and change that statistic for all Australians. “Melanoma doesn’t discriminate - it can affect anyone at any time. Its not just an older person’s disease; Toby is testament to that,” says Julie-Ann.

“Even if you’re sun smart, melanoma can still affect you.I It’s so important to be aware and act fast on anything you think looks suspicious as it might just save your life,” adds Julie-Ann.

Join Toby in the fight against melanoma by signing up for a Melanoma March event near you.

World Health Organisation launches 4th edition of Classification of Skin Tumours
31 Aug 2018

World Health Organisation launches 4th edition of Classification of Skin Tumours

The World Health Organisation (WHO) is releasing the 4th edition of Classification of Skin Tumours.

Professor John Thompson awarded prestigious 2018 RPA Foundation Research Medal
31 Aug 2018

Professor John Thompson awarded prestigious 2018 RPA Foundation Research Medal

Former Executive Director of Melanoma Institute Australia Professor John Thompson awarded the prestigious 2018 RPA Foundation Research Medal.

Support PBS listing for pembrolizumab
23 Aug 2018

Support PBS listing for pembrolizumab

Clinicians, patients and other stakeholders in the cancer community are invited to make submissions in support of the PBS listing for pembrolizumab.

World Congress on Cancers of the Skin 2018
17 Aug 2018

World Congress on Cancers of the Skin 2018

The World Congress on Cancers of the Skin 2018 has featured many minds from MIA sharing their expertise and wealth of knowledge with over 1000 attendees from around the world.

Melanoma Institute Australia welcomes new CEO Matthew Browne
09 Aug 2018

Melanoma Institute Australia welcomes new CEO Matthew Browne

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Melanoma in Practice: Nurse Conference
26 Jul 2018

Melanoma in Practice: Nurse Conference

It was a full house this week at Melanoma Institute Australia thanks to our ‘Melanoma in Practice: Nurse Conference’. 

Reducing the risk of melanoma in young adults
19 Jul 2018

Reducing the risk of melanoma in young adults

A new study from The University of Sydney shows that sunscreen reduces melanoma risk by 40 per cent when used from a young age.

Melanoma Institute Australia launches free e-learning education portal
20 Jun 2018

Melanoma Institute Australia launches free e-learning education portal

Melanoma Institute Australia (MIA) has launched a free e-learning portal to educate healthcare professionals about the latest advances in melanoma diagnosis and treatment.

David Day and a lifetime of missed moments
08 Jun 2018

David Day and a lifetime of missed moments

When David lost his life last year, he was 33, with three daughters under six.

Australian melanoma experts share latest breakthroughs with world's best oncologists
06 Jun 2018

Australian melanoma experts share latest breakthroughs with world's best oncologists

ASCO 2018 brings together the world's best in oncology from around the world. 

ASCO 2018 – the important role of clinical trials
06 Jun 2018

ASCO 2018 – the important role of clinical trials

Clinical trials are just that – trials in a clinical setting to evaluate the effectiveness or otherwise of individual and combination treatments.

MIA Scoops Awards at the International Academy of Pathology
04 Jun 2018

MIA Scoops Awards at the International Academy of Pathology

Melanoma Institute Australia scooped the award pool at the Annual Scientific Meeting of the International Academy of Pathology. 

Updated Clinical Guidelines for Melanoma
25 May 2018

Updated Clinical Guidelines for Melanoma

Melanoma patients across Australia will benefit from the release of updated clinical care guidelines.

Melanoma and Marital Status: A Study
11 May 2018

Melanoma and Marital Status: A Study

An American study has discovered a link between early detection and marital status in melanoma diagnosis. 

A weekend in Paris talking all things pathology...
02 May 2018

A weekend in Paris talking all things pathology...

An international course on melanoma pathology in Paris, France co-directed by Professor Richard Scolyer took place over the weekend.

Our own 'Australian Story'
30 Apr 2018

Our own 'Australian Story'

Professor Richard Scolyer highlights the difficulties of diagnosis following the Australian Story feature program on Emma Betts. 

Cancer Australia releases 'stage at diagnosis' data for top five incidence cancers – including melanoma
27 Apr 2018

Cancer Australia releases 'stage at diagnosis' data for top five incidence cancers – including melanoma

For the first time in Australia, national data has been released on cancer stage at diagnosis. This data explores the top five incidence cancers – female breast cancer, colorectal, lung, prostate cancers and melanoma.

The inspiring story of Emma Betts premieres on Australian Story
16 Apr 2018

The inspiring story of Emma Betts premieres on Australian Story

'Dear Emma' - a tribute to the life and times of a young woman determined to raise awareness about melanoma. 

Toyota helps tackle Australia's national cancer - melanoma
09 Apr 2018

Toyota helps tackle Australia's national cancer - melanoma

Carole Renouf, CEO for MIA thanks Toyota for helping fuel ongoing melanoma research.

Tackling the Kokoda Trail for melanoma
06 Apr 2018

Tackling the Kokoda Trail for melanoma

Fraser Dykes tackled the Kokoda Trail on an eight day trek in memory of his friend Mark 'Bod' Boddison.