An open letter to all young Australians

An open letter to all young Australians

25 February 2020

Dear 26-year-old

An open letter to all 26-year-olds

From Leon and Tamra Betts

 

Dear 26-year-old,

We are the parents of a beautiful young woman who passed away in April 2017 from melanoma, at the age of 25. Our Emma never made it to her 26th birthday. But you have, and this is why we are writing to you.

As you enjoy your 27th year, and plan excitedly for your future career, your world travels, the family you dream of building with your loved ones and the memories you can’t wait to create – please take a minute to read about Our Emma.

We tell Our Emma’s story with pride and love, but most of all we tell it to potentially save your life. We don’t want your parents, your siblings, or your husband, wife or partner to go through what we have.

Our Emma’s melanoma story began in 2012 whilst enjoying life working as a volunteer in East Timor. A dive instructor told Our Emma that he thought a mole on her shoulder looked unusual, so she returned home to have it removed. It was early stage melanoma. With youthful positivity in abundance, Our Emma returned to East Timor, travelling back to Brisbane three monthly for skin checks. Less then 12 months later Our Emma found a lump under her arm. Her melanoma had spread and her life was about to change dramatically. By January 2014 melanoma had spread around her body and her diagnosis was terminal. Our Emma was going to die.

We were very fortunate to have Our Emma (our much loved daughter, sister, wife, granddaughter and aunty) with us for another three years. Our Emma had a partial response to clinical trial drugs which gave her precious extra time – extra time to marry her sweetheart, Serge, make memories with her nieces and nephews, travel, and do all she could to educate on sun safe behaviour and raise funds for Melanoma Institute Australia for melanoma research.

Our Emma didn’t have a choice. Melanoma was not something she put herself at risk of.

She didn’t ‘worship the sun’. She wore a hat, sunscreen and did all she could to protect her skin.

Our Emma had pale skin, red hair and blue eyes and we would learn from her diagnosis that she also carried the BRAF gene, which made her prognosis more dire. But she also had grit and determination in spades, and she used that to do all she could to raise awareness to save other lives, right up until her body was no longer able.

But Dear 26-year-old, you do have a choice, and that is not to put yourself at greater risk of melanoma by using solariums. Commercial solariums have been banned in Australia for a very good reason. They kill.

Please think of your loved ones. Our hearts are broken and we are learning to live our life around our grief. I’m sure you don’t wish to see your family go through this trauma.

Just as she will always be Our Emma, you too are someone’s Dear 26-year-old.

We implore you to love the skin you’re in, and not use solariums, for your family’s sake.

If our pleading isn’t enough, then please learn from Our Emma herself. She wrote a blog, Dear Melanoma, through which she candidly detailed her life with melanoma. Please read it, so you know what you are saving yourself from.  www.dearmelanoma.com

 

Leon and Tamra Betts

New online calculator launched to determine risk of spread of melanoma
15 Jun 2020

New online calculator launched to determine risk of spread of melanoma

Clinicians around the world now have access to a new online calculator that predicts the risk that a patient’s primary melanoma has spread to nearby lymph nodes.

Tags: melanoma
Queen's Birthday Honour for Professor Georgina Long
08 Jun 2020

Queen's Birthday Honour for Professor Georgina Long

Professor Long has been appointed as an Officer (AO) of the Order of Australia (General Division) for  distinguished service to medicine, particularly, to melanoma clinical and translational research, and to professional medical societies. 

Tags: melanoma
Danny's inspiring survival story
30 May 2020

Danny's inspiring survival story

“I had a complete response within about six months. All of my tumours disappeared."

Tags: melanoma
MIA in the spotlight at ASCO virtual conference
30 May 2020

MIA in the spotlight at ASCO virtual conference

‘We are extremely proud of our ongoing contribution to the global effort to save lives from melanoma, with Dr Silva’s prestigious award proof that we continue to lead the way,'

Tags: melanoma
Professor Richard Scolyer achieves h-index of 100
26 May 2020

Professor Richard Scolyer achieves h-index of 100

MIA's Co-Medical Director, Professor Richard Scolyer, has achieved a Google Scholar h-index of 100.

How we connected at Melanoma March Virtual 2020
21 Apr 2020

See how we connected at Melanoma March Virtual 2020

We know what Melanoma March means to our community, so when we had to cancel our physical events, we created Melanoma March Virtual so that everyone across Australia could still connect to honour loved ones and support each other.

Melanoma meets its match.
07 Apr 2020

Melanoma meets its match.

A must-read personal account by Garry Maddox in The Sydney Morning Herald of how immunotherapy is revolutionising melanoma treatment.  

 

Next Steps for National Screening Program for Melanoma
23 Mar 2020

Next Steps for National Screening Program for Melanoma

On Friday, a publication that lays out the steps needed to find out if a systematic screening program for melanoma would benefit all Australians was published in the Australia & New Zealand Journal of Public Health.

Melanoma March Update
13 Mar 2020

Melanoma March Update

Melanoma March events have been cancelled. A Virtual March will be held on Sunday 29th March. Read this statement from MIA CEO Matthew Browne.   

Saving lives this summer: 'Game On Mole!'
11 Mar 2020

Saving lives this summer: 'Game On Mole!'

Thank you to the thousands of Aussies who bought ‘Game On Mole‘ t-shirts, took selfies, shared t-shirt pics on social media and started lifesaving conversations around sun safety and skin health.

PBS boost for melanoma patients
01 Mar 2020

PBS boost for melanoma patients

Melanoma patients now have greater access to subsidised immunotherapy thanks to additional treatments today being listed on the PBS.

An open letter to all young Australians
25 Feb 2020

An open letter to all young Australians

Brisbane couple Leon and Tamra Betts were, like thousands of others around Australia, on the couch watching MAFS when newlywed Natasha ran through her weekly beauty routine. When they heard the 26-year-old mention solarium use, they were shocked, and then saddened, prompting this open letter to all young Australians.

MIA leads world-class skin tumour pathology conference
14 Feb 2020

MIA leads world-class skin tumour pathology conference

Professor Richard Scolyer, Co-Medical Director of Melanoma Institute Australia, will welcome international attendees this weekend to a sold-out, two-day course on ‘Pigmented Lesions and Other Hot Topics in Dermatopathology’.

MAFS, it is time for a reality check on solariums.
07 Feb 2020

MAFS, it is time for a reality check on solariums.

It is time for a reality check on solariums.
They have no place in anyone’s beauty routine.

Community Fundraising January Wrap-Up
07 Feb 2020

Community Fundraising January Wrap-Up

Throughout January our community created, hosted and participated in some amazing events, each of them helping us on our quest to reach zero deaths from melanoma.

Kyly Clarke urges Aussies to step up to save lives from melanoma
03 Feb 2020

Kyly Clarke urges Aussies to step up to save lives from melanoma

Australian television presenter, interior designer and mother Kyly Clarke has been announced as the new Ambassador for Melanoma Institute Australia (MIA) and its national awareness and fundraising campaign Melanoma March.

Improving support for our patients across Australia.
03 Feb 2020

Improving support for our patients across Australia.

Melanoma Institute Australia has recently partnered with three other organisations to boost support for melanoma patients and their carers across Australia.   

Boost to melanoma support in WA
31 Jan 2020

Boost to melanoma support in WA

Melanoma patients and their families across Western Australia will benefit from strengthened and expanded services with the merging of melanomaWA and Melanoma Institute Australia.

New Test to Predict Primary Melanoma Progression
21 Jan 2020

New Test to Predict Primary Melanoma Progression

Australian researchers have played a critical role in the discovery of a potential new test to predict which early stage melanoma patients are at high risk of their disease recurring and progressing.

Community Fundraising December Wrap-Up
14 Jan 2020

Community Fundraising December Wrap-Up

We are extremely grateful for our community fundraisers, who, even in this difficult time, have given up their time and effort to fundraise so we can continue to work towards our goal of zero deaths from melanoma.