Melanoma patients and their families urged to speak up and put national spotlight on melanoma.

Melanoma patients and their families urged to speak up and put national spotlight on melanoma.

15 April 2021

Melanoma patients and their carers are being urged to participate in a ground-breaking survey which will shape the future of melanoma treatment, research, support and funding in Australia.

 Have your say, go to survey 

Melanoma Institute Australia and Melanoma Patients Australia are partnering to develop the country’s first ever landmark melanoma report: State of the Nation – A Report into Melanoma.

This comprehensive report will examine the issues currently facing melanoma patients and carers across Australia and make recommendations for policy change and investment to substantially improve outcomes for them as well as the wider Australian community.

‘Australia has the highest melanoma rates in the world, and this State of the Nation report will for the first times provide an indepth assessment of the far-reaching impacts of the disease across the country,’ said Melanoma Institute Australia CEO Matthew Browne.

‘It will provide the opportunity to revolutionise melanoma policy, funding, care and support services going forward, which will in the long term benefit all Australians for generations to come.’

Critical to developing State of the Nation- A Report into Melanoma is input from melanoma patients and their carers from across Australia. This is a call to action and we are asking people to take part in an online survey so we can understand their personal experiences.

‘The survey will provide invaluable insights into the impact of melanoma and the realities faced by patients and their families,’ said Melanoma Patients Australia CEO Victoria Beedle.

‘Your feedback is critical to the success of this State of the Nation report and I urge all melanoma patients and their families to invest just half an hour in completing this survey. By doing so, you will become part of the solution to this huge problem impacting communities across the country.’

Key areas being addressed in State of the Nation- A Report into Melanoma include:

  • melanoma prevention and awareness, including the effectiveness of current campaigns and what more needs to be done
  • early detection and diagnosis including the feasibility of a national skin screening program
  • treatment options available and access to breakthrough therapies
  • supportive care services during and after treatment
  • issues facing survivors and their families after successful treatment
  • palliative and end of life care
  • research priorities, opportunities and challenges.

The State of the Nation report will be presented to government mid-year with the aim of guiding future policy and funding direction to help reduce the impact of melanoma on Australian society.

‘Every 30 minutes another Australian is told they have melanoma – so in the time it takes you to do the survey, another family will be embarking on the daunting and frightening melanoma journey,’ Matthew Browne added.

‘Completing the survey is a small investment of time with a potentially life-changing impact, and I thank all our wonderful melanoma community for stepping up to help.’

 Have your say, go to survey 

MIA joins Sydney Health Partners
22 Dec 2021

MIA joins Sydney Health Partners

Sydney Health Partners' goal is to ensure world class research is successfully implemented & scaled-up to benefit patients & wider society.

Tags: melanoma
Congratulations Dr Hansol Lee
22 Dec 2021

Congratulations Dr Hansol Lee

Promising young MIA researcher conferred with University of Sydney PhD.

Tags: melanoma
Olympians join forces for melanoma warning
13 Dec 2021

Olympians join forces for melanoma warning

Jana Pittman and Melinda Gainsford-Taylor urge Australians to be sun-safe and check their skin as they join the Game On Mole campaign in support of their much-loved coach

Tags: melanoma
MIA research wins Cancer Institute of NSW 'Wildfire Highly Cited Publication'
07 Dec 2021

MIA research wins Cancer Institute of NSW 'Wildfire Highly Cited Publication'

Cited an incredible 427 times around the world, showing its vital role in improving outcomes for people with advanced melanoma.

Tags: melanoma
Prof Richard Scolyer receives University of Tasmania Distinguished Alumni Award
06 Dec 2021

Prof Richard Scolyer receives University of Tasmania Distinguished Alumni Award

Honouring the exceptional impact of his work on communities around the world.

Tags: melanoma
MIA's Co-Medical Directors receive University of Sydney's Vice-Chancellor's Award for Outstanding Research
03 Dec 2021

MIA's Co-Medical Directors receive University of Sydney's Vice-Chancellor's Award for Outstanding Research

Awarded for their life-saving discoveries transforming melanoma patient care.

Tags: melanoma
Aussies urged to mark start of summer by checking their skin
01 Dec 2021

Aussies urged to mark start of summer by checking their skin

National day of action called amidst fears COVID lockdowns have deterred patients from seeking potentially life-saving medical treatment

Tags: melanoma
Prof Georgina Long AO awarded the 2021 Ramaciotti Medal for Excellence in Biomedical Research
24 Nov 2021

Prof Georgina Long AO awarded the 2021 Ramaciotti Medal for Excellence in Biomedical Research

Recognising her pioneering work in immunotherapy in melanoma, transforming the care of patients worldwide.

Tags: melanoma
AMC2021 conference wrap-up
23 Nov 2021

AMC2021 conference wrap-up

Clinicians and researchers from across Australia and beyond united online, bringing the AMC2021 conference theme of Promising Futures to life.

Tags: melanoma
Journalist and news reader Peter Overton our new National Ambassador
23 Nov 2021

Journalist and news reader Peter Overton our new National Ambassador

Melanoma Institute Australia is proud to announce that the Nine Network’s Peter Overton AM has joined us as a National Ambassador.

Tags: melanoma
MIA researchers feature on prestigious Highly Cited Researchers 2021 List
19 Nov 2021

MIA researchers feature on prestigious Highly Cited Researchers 2021 List

MIA is proud to announce that five of our researchers have been named on the Clarivate Annual Highly Cited Researchers™ 2021 list.

Tags: melanoma
New research into importance of skin surveillance to save lives from melanoma
04 Nov 2021

New research into importance of skin surveillance to save lives from melanoma

New research shows routine skin checks by a health professional, coupled with checking your own skin, are vital in saving lives from melanoma.

Tags: melanoma
Game On Mole - saving lives this summer
31 Oct 2021

Game On Mole - saving lives this summer

With new patient figures indicating people may have deferred skin checks during the pandemic our Game On Mole campaign is more important than ever. 

Tags: melanoma
Melanoma March physical events in 2022
22 Oct 2021

Melanoma March physical events in 2022

We are excited to announce a return to our much-loved physical Melanoma March events in March 2022! 

Tags: melanoma
Community Fundraising Wrap Up July-Sept 2021
15 Oct 2021

Community Fundraising Wrap Up July-Sept 2021

Read more about the wonderful MIA community fundraising initiatives held recently.

Tags: melanoma
Australian researchers spearhead paradigm shift in melanoma treatment
20 Sep 2021

Australian researchers spearhead paradigm shift in melanoma treatment

Drug therapy set to become standard treatment in high-risk early stage patients to stop disease spread

Tags: melanoma
Melanoma Bike Bash 2021: What a ride!
20 Sep 2021

Melanoma Bike Bash 2021: What a ride!

Over two fun, yet challenging, days in September an intrepid group of riders and crew successfully completed the annual Melanoma Bike Bash in WA!

Tags: melanoma
Prof Georgina Long AO awarded inaugural Outstanding Female Researcher Medal from AAHMS
16 Sep 2021

Prof Georgina Long AO awarded inaugural Outstanding Female Researcher Medal from AAHMS

Prof Long AO has been recognised by Australian Academy of Health and Medical Sciences for her transformative work advancing melanoma treatments.

Tags: melanoma
MIA researchers awarded $7.2m in NHMRC grants for health research
15 Sep 2021

MIA researchers awarded $7.2m in NHMRC grants for health research

Three MIA researchers at University of Sydney received grants to further their important melanoma research.

Tags: melanoma
Amie St Clair Ball in Wagga postponed for a third time
06 Sep 2021

Amie St Clair Ball in Wagga postponed for a third time

COVID restrictions continue to impact fundraising for melanoma services in Riverina.