Q&A with Melanoma March Fundraisers
10 March 2015
Adrienne and Georgia lost their mother Patricia in 2009. They are taking part in this year's Melanoma March for the second time and hope that with their fundraising they can help another family go through what they had to. Read about how they are rallying their team together and hope to raise as much as possible.
Why are you taking part in this years Melanoma March?
We are taking part in this year's Melanoma March as we sadly lost our mother in 2009 to this aggressive disease. Mum first found her mole on the inside of year leg 14 years prior to her death. Adrienne was in year 1 and Georgia was in year 11. At the time, both of us didn’t quite comprehend the seriousness of her illness, nor did we expect that it would return some years later. Mum went into remission and in 2008 we discovered that the cancer had returned and was growing in her abdomen. After major surgery to remove the cancer we received the news that the cancer had spread to many of Mum’s organs. Within a few months it eventually reached her brain and Mum lost her battle. Our Mum wasn’t lucky enough to have the option of the trials and programs that are offered to melanoma patients now. Upon her first diagnosis in 1994 there were very limited options and when the cancer returned, it was too late for her. We are marching to raise awareness of melanoma in the hope that people avoid the harsh sun, understand the dangers of UV exposure and maintain regular skin check ups – whether they have had melanoma in the past, are predisposed to it or just need to keep an eye out for changes. In addition to raised awareness it is so important to continue to raise funds in order to fund important trials. We can only dream about what could have been a better outcome for our mother. Yet we hope that other individuals can get access to such valuable treatment that our mum couldn’t. If our fundraising can help the lives of another family to not go through what we did, we will do all we can.
How are you fundraising for your team?
We have contacted all our friends and families and asked them to march with us or make a donation to our team. Friends are holding morning teas at work to rally marchers and raise funds. Adrienne is a school teacher and will be sharing her story and having a guest speaker at her school this week.
How many people are in your team?
At present we have around 20 marchers who will be walking with us. We hope this number will continue to grow this week!
What are some of your tips to get your friends and family to donate?
The power of social media is great. We have been posting daily reminders to donate and register and set up a facebook event which we regularly update. Sending out SMS reminders has also been effective. We find that thanking people publicly on Facebook everytime we receive a donation helps to remind people as well as provide positive encouragement for others! We have asked members of our team to repost the link to register and donate. The last year our team marched in Manly we raised over $2000. We are close to $1000 at the moment and are pushing for more donations to come through this week. It would be amazing to match or beat our last effort. We find that most people donate in the week leading up to the event.
Donate now. Every bit counts towards a cure.
Five years ago Julie Randall was diagnosed with melanoma and was given months to live. The melanoma had spread throughout her body. The doctors said it was incurable and she’d be lucky if she survived the next nine months. Julie, a patient at Melanoma Institute Australia under Professor Georgina Long was placed on an experimental drug trial. To watch the entire program, visit 9now.com or click here.
Meet our latest Surgical Oncology Fellow, Eva Nagy, to find out more about life as a surgical oncologist, why she came to MIA and what she hopes to achieve.
Melanoma research at ASCO this year focussed on the more precise use of current treatments to ensure optimal treatment for each patient.
MIA recently demonstrated that reflectance confocal microscopy is a useful tool in the clinic to diagnose suspicious-looking lesions in the mouth.
New research is likely to change the way melanoma is managed in many patients by reducing the need for major surgery and its associated morbidity and cost.
Researchers from MIA will present their latest research findings to the world’s largest oncology conference in early June.
Australian researchers pioneer life-extending treatment for advanced melanoma patients with brain tumours
Australian researchers are the first to demonstrate that patients with advanced melanoma which has spread to the brain can have increased life expectancy and possibly even beat the disease.
Melanoma March 2017 - that's a wrap! Thank you to everyone that helped make it happen.
Thank you so much to all those who contributed in a variety of ways to Melanoma March 2017 in 17 different locations and more around the country! You have contributed to getting the Big Data for Melanoma national Research Project happening!
By looking at the ‘dark matter’ of the genome, new research has found that genetic changes in acral and mucosal melanoma are completely different to mutations found in skin melanoma.
‘Slip, slop, slap’ is synonymous with being Australian and playing it safe in the sun. These sun smart rules reduce our chances of getting melanoma of the skin. However, new research tells a different story for those affected by rarer forms of melanoma.
Using MIA's patient database, researchers have developed conditional survival estimates for Stage III melanoma patients to more accurately predict survival outcomes.
MIA is proud to be celebrating an important milestone – the 60th anniversary of melanoma research and Australian-led global efforts to find a cure.
Research achievements by MIA were celebrated at the annual Sydney Medical School recently.
In this Global Research Report we showcase advances in medical oncology, reveal unexpected pathology in acral and skin melanoma, and uncover biomarkers and new gene targets for melanoma.
Professor’s Long and Scolyer are well known in the academic community and beloved by their patients. But we wanted to get to know our new Conjoint Medical Directors a little more and hear their plans on making an impact on melanoma.
Wyong Rugby League Club Group has joined forces with Melanoma Institute Australia to help end melanoma for future generations.
Melanoma research has reached a milestone with the 10,000th patient giving their permission for their blood and tissue samples to be used in the world’s largest melanoma biospecimen bank.
MIA's researchers and clinicians are in Seattle, USA, today sharing their research findings at the prestigious Society of Surgical Oncology’s Annual Cancer Symposium.