Patient Support: Melanoma Matters

Melanoma Institute Australia has launched our new patient video series, Melanoma Matters. Melanoma Matters is an innovative four-part series designed to deliver vital insight through the eyes of a patient.

  • Melanoma and life expectancy (Julie’s story)
  • Melanoma and anxiety (Ingrid’s story)
  • Melanoma in young people (Adam’s story)
  • Melanoma spreading or returning (Karen’s story)

Thank you to the four patients who have bravely shared their stories to help others.

MIA would like to thank the following organisations for their support of Melanoma Matters: Melanoma Patients Australia, Amie St Clair Melanoma Trust, melanomaWA, Melanoma Tasmania and Peter MacCallum Cancer Centre.

Funding for this project was generously provided by Bristol-Myers Squibb, Novartis and MSD.

Melanoma Matters Video 4: Melanoma spreading or returning (Karen's story)

Karen has been through the journey of melanoma progression, scan anxiety and fear of recurrence. Watch her story to find out how she managed and where to go for more help.

Additional support resources:

 Melanoma Institute Australia. Stages of melanoma

 Understanding stages of melanoma

 Melanoma Institute Australia. Treatment options

 Understanding melanoma treatment options

 Melanoma Patients Australia. Fear of recurrence

 Fear of recurrence

 Melanoma Patients Australia. What are the stages of melanoma?

 Staging of melanoma 

  Cancer Council Australia. Living Well After Cancer Booklet  

 Living Well After Cancer booklet

 

Melanoma Matters Video 3: Melanoma and young people (Adam's story)

Adam will never forget the day he was diagnosed with melanoma at age 27. After a hairdresser noticed a changing mole, Adam saw his doctor, thinking it would be a simple matter of having it cut out.

Adam has been through a rollercoaster of emotions and was surprised that melanoma could happen to someone his age. Hear his story as he sheds light on what it’s like to be diagnosed with melanoma so young.

Additional support resources:

 Melanoma Institute Australia. What causes melanoma in 90% of young   Australians?

 Causes of melanoma in 90% of young Australians

 Canteen. Skin Cancers – Information, treatment and support 

 Canteen - Skin Cancer Information

 RedKite. Information and support.

 RedKite - How we help

 Call time on melanoma. A social initiative for (sun) smart humans.  

 Instagram: calltimeonmelanoma

 

Melanoma Matters Video 2: Melanoma and anxiety (Ingrid's story)

Anxiety is a familiar emotion to many people diagnosed with melanoma. Ingrid finds it most challenging around scan time when she’s waiting for results.

Learn from Ingrid’s experience on how she manages anxiety and where to find support.

Additional support resources:

 Melanoma Institute Australia. Support and patient stories 

 Support and patient stories

 Melanoma Patients Australia. Anxiety is Anxiety, period 

 Anxiety 

 Cancer Australia. Living with cancer

 Living with cancer

 Cancer Council. Emotions and cancer.

 Emotions and cancer booklet.

 IMPACT Melanoma (US). Just diagnosed.

 Just diagnosed.

 

Melanoma Matters Video 1: Melanoma and life expectancy (Julie’s story)

After being given a life expectancy of six months, Julie's life - and that of her loved ones - was turned upside down by melanoma. Hanging on to hope was crucial. In this moving video Julie shares how she got through it and where she went for help.

You can hear more of Julie’s inspiring story in her book, Patient 71 

Additional support resources:

 Melanoma Institute Australia. Melanoma facts and statistics

 Melanoma facts and statistics.

 Cancer Research UK. Coping with advanced melanoma.

 Coping with advanced melanoma.

 Cancer Council NSW. Staging and prognosis for melanoma.

 Melanoma stages and prognosis

 Cancer Council NSW. Advanced melanoma.

 Advanced melanoma.

 Cancer Council Victoria. Facing End of Life.

 Facing End of Life Booklet